Trolls compared Jameson to a pug Picture: AliceAnn

Trolls compared Jameson to a pug (Picture: AliceAnn Meyer)

Around a year ago AliceAnn Meyer posted a picture of her disabled son Jameson on the internet.

Merely the proud female parent, who documents her son's journey on her weblog, was disgusted to learn that trolls had stolen the epitome and turned it into a barbarous meme.

Jameson suffers from Pfeiffer syndrome, which causes premature fusion of the skull and alters the shape of the head and face of those affected.

AliceAnn wrote on her web log: 'That sweet motion picture has resurfaced and is circulating effectually the internet. Except, that the photo has been altered. Someone, somewhere, decided for who knows what reason, to take that picture and create a meme comparison my son to a pug.

'What compels a person to do such a thing I will never understand. There is no manner for me to know who did this, but for every post and share of this meme I volition practice everything in my ability to go information technology taken downward.'

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But the mother has been inundated with support from members of the public.

She continued: 'Offset, I take to say thanks. Thanks from the very bottom of my heart to every person that has stood upward for Jameson.

'The outpouring of love and support has been overwhelming. I appreciate each and every one of yous that has commented, reported, and reached out to usa.

'I tin can't put into words what it means to know y'all are taking your personal time to fight for Jameson. If yous encounter this meme, please let me know. Yous can study the post, but if you send me a link I can file a claim for copyright violation.'

AliceAnn says she will continued to exercise anything she tin can to eradicate the picture from the internet.

AliceAnn's bulletin to the trolls

So, to everyone that "LOL'd", shared, and posted that meme, let me commencement by introducing you to the child yous find and then funny.

His name is Jameson. He is very real, and he was born with Pfeiffer syndrome.

What is that? I'm glad you asked.

Pfeiffer syndrome is a craniofacial syndrome that includes craniosynostosis (premature fusion of the skull).

The all-time fashion I can explain it is that at that place was a genetic mutation on the gene that tells your tissues and bones when to commencement and stop growing.

Some grew as well much (fused skull sutures), and some not enough (mid-face hypoplasia). As a consequence, Pfeiffer's kids vary from i to the other. Because of the severity of the mid-face hypoplasia and cranial abnormalities some kids have more issues breathing, eating, seeing, and hearing than others.

Some kids have just 2 cranial sutures fused, others have all of them fused. It all depends on the child. All of this determines what kind, and how many surgeries will be needed.

Jameson has had 2 cranial vaults, an anterior and a posterior, he'due south had 4 sets of tubes placed in his ears, had his tonsils and adenoids removed, and soft palate reconstruction to assistance his sleep apnea. We know other kids, younger than Jameson that have had many more surgeries, and been through so much more than.

Some kids have had very serious surgeries to place shunts to drain fluid and salvage pressure in their heads (chiairi malformations). These kids undergo multiple major surgeries early in their lives and they are never really able to "just be kids". These are the kids you are making fun of. Permit me also tell y'all at that place are a whole bunch of different craniofacial syndromes other than Pfeiffer syndrome. And there are besides kids born with craniosynostosis that don't have whatever syndrome at all linked to it.

As I read comments on these posts I realized how much ignorance is out there about craniosynostosis and the various syndromes that can be associated with it. So, I wanted to clear a few things upwardly. The result of these weather condition are not due to something the parent did or did non practice during their pregnancy. These are almost e'er random genetic mutations. Pregnant, at that place isn't anything that tin can increase or reduce your chances of having a child with Pfeiffer syndrome (unless you already have it of course).

If y'all are interested in learning more you can easily find information online from reputable places like the National Institutes of Wellness, and Mayo Clinic. When Jameson was born nosotros found a wealth of knowledge about craniosynostosis and craniofacial syndromes from the Children'southward Craniofacial Association. If y'all enjoy reading, I highly recommend the book Wonder, by R.J. Palacio.

So, to all of you out in that location that are laughing so hard at my son, know that this in fact could exist your child. And if one solar day this does happen to ane of you lot that are out at that place laughing and making fun, I hope and pray you change your eye and welcome that kid with loving arms.

If you are reading this and you laughed simply knew it was wrong I promise next time you choose to stand up up for the child yous see beingness fabricated fun of.

I know y'all are out there considering I read countless comments from complete strangers standing up and maxim how wrong information technology was. Only considering you don't know the child personally doesn't mean it doesn't matter. It takes a village, and in this day and age of social media it is fifty-fifty more important to stand up and do the right thing.

To those of you out there that withal have this meme posted know that a sleeping giant has awoken. Y'all have poked the carry. You lot may non yet be familiar with the cranio-community, but you will. In that location is an regular army of cranio-warriors fighting for Jameson and all the other kids out in that location.

I hope my tone is not negative, if it seems that manner I apologize, just I am a protective mother.

I promise you that as hurt as I am that someone created this meme I am non naive enough to believe in that location aren't people out there who will mock and peachy my kid. But, I will always do what I can to encourage people to open up their minds, hearts, and lives to Jameson and kiddos like him.

We ever Cull Kind, and we want you to every bit well.

What can you practise to aid? If you run across this face somewhere information technology doesn't belong, or if you encounter that meme, screenshot it and send information technology to me.

Please do not share the meme.

The screenshot also provides me with proof.

You lot can too study it, as many times every bit you want.

Unfortunately, that'due south really about information technology for now. Once something is out in that location it's there.

All the same, I pass up not to fight. Information technology is absurd to me that it volition e'er be ok to target children to degrade and humiliate them.

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